Welcome to the NFED from Michael Parisien on Vimeo.
I travelled to Colorado Springs this summer to document the NFED’s (National Foundation for Ectodermal Dysplasias) annual family conference. It was a very rewarding experience full of great people and their stories. My friend and colleague, Ryan White, brought me on board to assist him in doing Oral Histories for some of the families with these conditions.
Please watch the four minute awareness video I shot and edited and do what you can to get involved.